Score one for pushy parents. The families of two children with cystic fibrosis who need new lungs but were ineligible for adult organs have successfully used the courts and public opinion to get their daughter and son on the adult waiting list, which is normally unavailable to kids under 12.(Snip)There are countless other conditions that land a person on a transplant list, and each organ has different criteria for who is first in line. “An important feature of the system by which the United States has decided to allocate organs is equity. Equity means different things for different organs,”
Comments: We can´t put our heads in the sand on this, folks...
This is an important read, if for nothing else than the understanding of what went into making the rules in the first place. And they were made by the private nonprofit organization that was set up to handle the organ transplantation program in our country.
I have been uncomfortable with Hannity hawking this. As I said earlier, who was bumped off the top spot waiting for lungs? A father with young children? A mother with young children? This difficult decision is best left in the hands of medical people only.
Megyn Kelly, who has been very emotional about this, asked today what they´ll "do with the other lung?" (from the donor). She is so ill-informed that she didn´t know that a person with CF must have two new lungs. Even then they are not free of CF in their bodies, but their new lungs are CF-free.
As good as Fox is (and it is far better than the other TV news outlets), the ignorance that abounds there can be stunning. It does not keep them from using their bully pulpit to press on regardless... "Don´t confuse me with the facts!!!!!"
I was appalled at Sarah´s parents´ exploitation of this case. How could they risk their daughter´s picking up an infection from a cameraman and news reporter in her hospital room? How could they keep her on public viewing when she looked exhausted and distressed? (She was not always merrily playing her xylophone or celebrating her birthday.) Mom would jump into bed with her and start talking to the newsers on camera.
And poor Dad believes she´ll be as good as new. And soon. Just like that! He is either ignorant or in denial.
I don´t understand enough about the medical ramifications of adult lungs vs. juvenile lunges, etc. I don´t want a cute, little girl to die, nobody does, I´m just too uninformed to know what to think about the particular case.
But I do know this. We had a neighbor who had had (as an adult) a double lung transplant. He lived for 7 years afterward, and at the time, he was the person who had lived the longest after having one.
We´ve only been in this house for 9 years, and we knew him for a couple, so this wasn´t a long time ago.
The elephant in the room is the corruption of the transplant industry. Everyone profits, except the donor. If you want more donors, make it worth their while. There are ways to compensate them while still avoiding outright sale of organs.
In addition to the pain and suffering of voluntary donors, and desecration of a terminal donor´s body, there is concern whether the doctors are thinking more about that organ than the donor´s life. Doctors will deny that up and down (Hippocratic oath and all that), but the worry is there. They can protest all they want, but the public votes by signing or not signing that donor card.
This article managed to miss the elephant in the operating theater. It is well known that organ donations among minority groups is much lower than average. ´Equity´ therefore requires allocating organs to minorities even though the tissue-typing results in a lower match score. This can result in earlier transplant organ failure which means needing even more donors to keep up with demand.
#4 if this mother had not done what she did with the media, her daughter would be dead. In my job in a children´s hospital related field, I watched so many parents just like this desperately try to save their children´s lives. I´ve seen them use the media to raise money for treatment costs and to get their cases noticed by doctors in other cities. Some are more successful at it than others, and sadly that comes down to luck a lot of the time. Anyone who has ever pitched a story to a local news reporter knows that. I don´t blame these parents for a second. If my daughter faced the same fate, I would manipulate the media in every way possible if there was even a chance that she would live as a result.
I was in the heart transplant sector for years, where the criteria were size and fit rather than age. I think the judge´s ruling had merit in that the criteria for success is size, not age, and therefore the age criteria was arbitrary and capricious. She did not jump ahead of those less in need, but was put on a par with others who were equally ill and size matched for transplant. She should do well, assuming she did not become too ill prior to her transplant to be salvageable.
Reply 12 - Posted by:
Ida Lil, 6/13/2013 12:08:57 AM (No. 9373394)
One criteria fits all seem to be the allotment theme and yes large lungs may not fit a child but who gets the lungs of a small woman say under 5 ft. tall. Was the rule really broken for this child since the donation seems to be a direct and private gift to her? I do not find the donor system the least bit heroic.
Well, it’s not like there’s any danger of this stuff crossing the porous border into the US… Tepojaco (Mexico) (AFP) – Mexican authorities scrambled Wednesday to find a truck containing “extremely dangerous” radioactive material used in medical treatment that was stolen by two gunmen two days ago, officials said. The white Volkswagen Worker truck was transporting a teletherapy device containing cobalt-60 when it was stolen Monday in the central Hidalgo state town of Tepojaco, near Mexico City, according to the International Atomic Energy Agency. (Snip)So they found the container, just not the incredibly dangerous material that was in it. The
A fourth student at the University of California Santa Barbara has come down with a strain of meningitis similar to the one that sickened eight Princeton University students in New Jersey, authorities said. The California students began getting sick about three weeks ago, according to a university statement. One student had to have both legs amputated, ABC News has learned. "He´s from my hometown. I hope he is doing well," said David Burkow, another student. "It´s just kind of scary because there is a constant fear." The California school has suspended social events, including sorority and fraternity parties, to avoid
With a ruling by a federal judge on Tuesday that Detroit is eligible to enter bankruptcy, the fate of the city’s art collection — one of the finest in the country — now moves front and center in the legal battle over the city’s future. But the judge, Steven W. Rhodes, questioned for the first time the push by some of the city’s largest creditors to sell paintings and sculpture from the Detroit Institute of Arts, a sale that could generate hundreds of millions of dollars or more. While he did not say specifically that the art should be spared,
WASHINGTON – The National Transportation Safety Board has removed the Association of Commuter Rail Employees as a participant in its investigation into the December 1 fatal derailment of the Metro-North passenger train in the Bronx that killed four people. Organizations designated as parties to investigations sign an agreement to abide by NTSB rules during an investigation, but on Tuesday, the chairman of the union, Anthony Bottalico, spoke to the media and discussed what he thought happened during the derailment and engineer William Rockefeller. “While we value the technical expertise that groups like ACRE can provide during the course of an investigation, it
A truck carrying potentially "extremely dangerous" radioactive material has been stolen in Mexico, the UN atomic watchdog said Wednesday. The International Atomic Energy Agency said the truck was carrying cobalt-60, used for radiotherapy treatment to combat cancer. An IAEA statement Wednesday said the truck was stolen Monday while taking the material to a radioactive waste storage center from the northern city of Tijuana. The IAEA said the heist occurred in Tepojaco, a town near Mexico City, and describes the load as `´extremely dangerous" if damaged or removed from its protective shielding. It said Mexican authorities are searching for the material. The statement provided
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Young Americans are turning against Barack Obama and Obamacare, according to a new survey of millennials, people between the ages of 18 and 29 who are vital to the fortunes of the president and his signature health care law. The most startling finding of Harvard University´s Institute of Politics: A majority of Americans under age 25--the youngest millennials--would favor throwing Obama out of office. The survey, part of a unique 13-year study of the attitudes of young adults, finds that America´s rising generation is worried about its future, disillusioned with the U.S. political system, strongly opposed to the government´s domestic surveillance apparatus,
Lebanon´s militant Shi´ite group Hezbollah said on Wednesday one of its commanders was killed outside his Beirut home overnight in an attack it blamed on Israel. The group said in a statement that Hassan al-Laqqis, "who served the resistance his entire life," was killed at around midnight in the southern Hadath district of the Lebanese capital. A previously unknown group, Ahrar al-Sunna Baalbek brigade, claimed responsibility for the attack in a message on Twitter. The group´s name suggested it had Lebanese Sunni Muslim links. Al-Laqqis was on his way home when he was killed, the official Hezbollah television station Al-Manar said. It
The New Jersey waitress whose story has been questioned after she claimed she received an anti-gay note instead of a tip on a restaurant bill was discharged under dishonorable terms from the Marines last spring after she stopped showing up, NBC 4 New York has learned. (Snip)NBC 4 New York learned Wednesday from a Pentagon source that Morales was dismissed from the Marine Reserve Corps in May because she wasn´t attending drills. It wasn´t immediately clear how often those drills were held, and Morales did not respond to a request for comment. Morales was formally discharged, or released from the Marines,
On weekends or late at night, the whine of high-performance engines echoes across an industrial park and nearby hills in Santa Clarita. In daylight, dramatic skid marks on the mostly unlined roadway are evidence of racing and burnouts. Speed aficionados know the spot well, on the far side of the 5 Freeway from the Magic Mountain theme park. They come to try their hand at "drifting," over-steering so that the tail ends of their Nissans and Mitsubishis slide and shimmy through a spot called Hercules Curve. Last Saturday, it was Paul Walker, star of the "Fast & Furious" film series — who
Senior officials in the White House have said that Israel Prime Minister Binyamin Netanyahu “is desperate and weak,” in reaction to Netanyahu´s remonstrations against the deal struck with Iran over its nuclear weapons program. Israeli television Channel 10 quoted the officials as saying “His pronouncements show a lack of self-confidence,” in an unusually harsh personal attack on Netanyahu. “We are not perturbed by his vocal opposition.”
I have never been much of a conspiracy theorist. For me it was always Oswald by himself from the Texas School Book Depository and nothing in the intervening fifty years has disabused me of this notion. For the most part, I’m an Occam’s Razor kind of guy — the most obvious explanation is likely to be true. (Snip) To put it bluntly, Occam’s Razor has moved. Things that were once possibilities now seem almost certainties to me. Principal among those is that Obama’s academic records are perpetually unavailable for a reason — and that reason is most likely that they reveal
One of President Obama´s chief political assets has been his ability to excite young people like almost no politician in history. But the days of America´s youth fawning over the president are over. A new Harvard University Institute of Politics poll released Wednesday confirms what other surveys have shown in recent months: Millennials have soured on Obama so much this year that their opinion of him largely mirrors the American public´s. Even though Obama does not ever have to face another election, he should be worried about the findings for a couple of reasons, which we will dive into momentarily.
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Good stuff from Jonathan Turley at today’s House hearing on executive power, although I regret that I couldn’t find a more user-friendly format for you to watch. There’s no compilation clip; you’ll have to make do with the C-SPAN embed by fast-forwarding to the time cues I give you and being patient while the vid buffers (and buffers, and buffers).(Snip)That brings us to point two: Even if Congress can’t stop Obama, the courts can. The problem there, though, says Turley, is that O and the DOJ have argued successfully in many cases that no one has standing to sue him
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Amid an array of “knock-out” attacks against a number of Jews in Brooklyn’s Crown Heights neighborhood, a city councilwoman pointed to the success of the Jewish community as triggering the aggression. Councilwoman-elect Laurie Cumbo emphasized that while she “admire[s] the Jewish community immensely” for its work ethic, black teens may see it differently. “While I personally regard this level of tenacity, I also recognize that for others, the accomplishments of the Jewish community triggers feelings of resentment, and a sense that Jewish success is not also their success,” Cumbo, who was recently elected, wrote in a letter. Chief among the issues
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